Useful Physical Therapies

BELOW YOU WILL FIND SOME AMAZING THERAPIES AND EQUIPMENT THAT HAVE SHOWN TO HAVE GREAT RESULTS AND PROGRESS. IT IS SO IMPORTANT TO PURSUE GOOD THERAPY PROGRAMS WHETHER DOING IT DAILY AT HOME OR OUT OF THE HOME AND ALSO AN INTENSIVE THERAPY THROUGHOUT THE YEAR. THESE THERAPIES WILL HELP IMPROVE THE STRENGTH, FUNCTION, BALANCE, CONFIDENCE AND OTHER AREAS.

THE THERAPIES OR EQUIPMENT LISTED WITH ** BESIDE THEM ARE THE THERAPIES USED BY MANY PARENTS WHOSE CHILDREN ARE AMONG THOSE WHO ARE ACCOMPLISHING ABOVE AND BEYOND THE EXPECTATION OF DOCTORS AND THERAPISTS AND EVEN WALKING WITHOUT WALKERS OR BRACES AND HAVE BETTER FUNCTION AND HEALTH OVERALL IN THEIR BODIES.
             THESE FAMILIES ARE SOCIAL NETWORK MEMBERS OF THIS FOUNDATION WHO SHARE PUBLICLY THE PROGRESS, IMPROVEMENTS OR STRUGGLES THEY HAVE. REQUEST TO JOIN OUR GROUP ON FACEBOOK.  REMEMBER THAT SOME THERAPIES ARE BASED ON AGE AND WHAT THEY CAN TOLERATE.



BELOW IS LINKS TO EQUIPMENT USED AT KENNEDY KRIEGER INSTITUTE:

1. RT 300 FUNCTIONAL ELECTRICAL STIMULATION (FES) ergometer - www.restorative-therapies.com

2. STANDER/GLIDER - www.altimatemedical.com

3. NEUROMUSCULAR ELECTRICAL STIMULATION UNIT - www.empi.com

4.THERASTRIDE - http://www.therastride.com

5. ARMEO - http://www.hocoma.com/en/products/armeo/

CHINESE THERAPY METHODS:

1. ELECTROWAVE THERAPY MACHINE - USED ON SCAR ON BACK AND LEGS

**2. ACCUPUNCTURE - HELPS BLOOD FLOW AND CIRCULATION and ALSO HAVE HAD STUDIES DONE WHICH ARE POSTED ON WWW.PUBMED.COM WHICH SHOW THAT THIS INCREASES THE AMOUNT THE BLADDER IS ABLE TO HOLD WHICH IS A HUGE PROBLEM IN SPINA BIFIDA! Search that site for studies done for overactive bladder and acupuncture or neurogenic bladder and acupuncture. Chinese doctors treating children with spina bifida and working with stemcells also recommend this.  www.thechandaplanfoundation.org provides grants for this for up to a year.

3. FIRECUPPING - YOU CAN PURCHASE A SAFER METHOD WHICH IS JUST SUCTION CUPPING. ASK YOUR LOCAL THERAPIST. CAN BE PURCHASED IN CHINA. - IF YOU FIND A LOCAL ACCUPUNCTURIST, THEY MAY KNOW HOW TO DO FIRECUPPING AS OUR LOCAL ONE DOES AND ALSO HAVE ELECTROWAVE THERAPY. THE ONLY PROBLEM IS THAT SOME INSURANCE ISN'T COVERING IT RIGHT NOW AND DR.S WON'T PRESCRIBE IT BECAUSE ITS CONSIDERED EXPERIMENTAL. GRANTS THROUGH www.thechandaplanfoundation.org

 **UNIVERSAL EXERCISE UNIT AND THERA SUIT / PHYSIO SUIT ARE AMAZING PIECES OF EQUIPMENT. THERE ARE INTENSIVE THERAPY PROGRAMS IN THE U.S WHICH USE THESE. THE KIDS COME OUT WITH IMPROVED STRENGTH AND ABILITY AS WELL AS CONFIDENCE. SOME INSURANCE COVERS IN STATE FOR THERAPY PROGRAM. GRANTS MAY COVER THE HOME EQUIPMENT IF DESIRED.

**THERATOGS

**AQUATHERAPY

**EQUINE THERAPY -  LOCAL FAMILY RESOURCE PROGRAMS HELP PAY FOR THESE THERAPIES AT TIMES.

**DO RANGE OF MOTION AND WIGGLE TOES...JUST AS IF THE BODY PARTS WORKED NORMALLY. FOR INFANTS YOU CAN PLACE THEM IN CRAWLING POSITION AND ASSIST BY USING TOYS AND A LITTLE KNUDGE. IT WILL TAKE TIME BUT DO NOT LISTEN TO THOSE WHO SAY THEY WILL NEVER CRAWL OR WALK. IT IS MORE OF A POSSIBILITY THAT THEY WILL DEPENDING ON THE LEVEL OF INJURY AND ALSO WHAT YOU EXPECT OF THEM. MANY FAMILIES HAVE BEEN TOLD THE CHILDREN WILL NEVER WALK OR CRAWL ONLY TO FIND THE OPPOSITE AFTER REALLY PUSHING THEM AND HELPING SUPPORT THEM IN THERAPY DAILY. WALKING AND STANDING KEEPS THEIR BODIES MORE HEALTHY. YOU CAN ALSO PURCHASE BOOTS FOR INFANTS TO WORK ON A STEP IN A SIT TO STAND POSITION REACHING FOR TOYS ON A CHAIR ARM.

**JOHNNY JUMPER SWING FOR INFANTS - AFFORDABLE TOY THAT CAN BE USED FOR THERAPY

**STANDERS OR GAIT TRAINERS ARE VERY HELPFUL AT THE YOUNG AGE AS WELL

**ADVOCATING FOR ANY BRACING TO HELP SUPPORT AT THE YOUNGEST AGE POSSIBLE AS WELL AS A WALKER. GET A REGULAR THERAPY PROGRAM GOING DAILY BASED ON THERAPIST RECOMMENDATIONS AND KNOWLEDGE OF WHAT YOUR CHILD CAN TOLERATE.

**WORK ON THE TREADMILL ASAP!! . GO TO THERAPY. YOU CAN ALSO JUST ASK YOUR COMMUNITY FOR A DONATED OLDER TREADMILL. THE WALKABLE TALL HARNESS FITS OVER THE TREADMILL.

**WALKABLE TALL LITE GAIT HARNESSING SYSTEM - WILL ALLOW YOU TO HAVE YOUR HANDS FREE WHILE MANIPULATING CHILDS LEGS OVER TREADMILL OR ALLOW CHILD TO HOLD ON WHIE WALKING. WIDE VERSION FITS OVER TREADMILL - WWW.SCHOOLSPECIALTYONLINE.COM  TO LOOK AT GAIT TRAINERS.

**TAOS - Walking device on wheels which can be billed as a brace and insurance will cover. Allows child to walk handsfree to practice regular walking or running patterns. Fun to use in stores or large lots. Also allows you to work with hand and arm strength as well as chest by tossing balls, etc. without worry of walker.

FOR FOOT DROP ISSUES: please visit www.x-strap.com  - having braces on alot of the day will have same affect. - also ask therapist about kinesio tape methods.

THE BIONESS IS NEW KNEE CUFF DEVICE THAT STIMULATES THE DROP FOOT TO LIFT WHEN WALKING.

FOR HELPING MUSCLE GAIN IN LEGS AND MOTOR NERVES IN DROP FOOT:
  -ESTIM -  www.empi.com - SPEAK WITH YOUR DR. AND THERAPIST BUT GET MANY OPINIONS. SOME INSURANCE WILL COVER. THE COMPANY ALSO HAS A HARDSHIP PROGRAM AND WILL PAY FOR SUPPLIES.

-NT2000-TES
Description:
 Threshold Electrical Stimulation (TES) is a form of Neuro Muscular Electrical Stimulation (NMES) however unlike conventional NMES, TES is applied at the sensory level giving only a very low level of stimulation over a long period of time. http://advancedmusclestimulators.com/page17.html


-LASORTOUCHONE - WWW.LASORTOUCHONE.COM  
HIP DISPLACEMENTS -  

  -BENIKS HIP COMPRESSION SHORTS: www.benik.com - will help hips stay positioned well while walking/crawling. Speak with therapist about best times to use. Keep an eye out for growth spurts and muscle contractions.

** - THERATOGS